Participatory medicine and health data rights on NPR
NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights.
Informatics for Consumer Health: Privacy, Security and Confidentiality
As part of a panel on privacy, security, and confidentiality, Susannah Fox discussed the “shadow economy” of health data that has sprung up, with all the dangers and opportunities of an unregulated market.
The New Online Demographics: What the Numbers Mean for Providers, Advertisers and Safety
Representatives from the Joint Center for Political and Economic Studies, the Pew Internet & American Life Project and the U.S. Internet Industry Association (USIIA) will discuss the new communities coming online in record numbers in the United St…
It’s Personal: Similarities and Differences in Online Social Network Use Between Teens and Adults
This presentation dives into the demographics of teen and adult social network users and looks at how youth use of social networks compares to use by adults, both in frequency, but also in purpose and behavior.
Teens and Mobile Phones
The Family Online Safety Institute convened the Wireless Online Safety Conference to examine issues around youth, mobile phones and safety. Amanda Lenhart sets the scene with this presentation, sharing 5 years of Pew Internet data on teens and cel…
Social Networking on the Radio
Last week my colleague, Amanda Lenhart, appeared on the Kojo Nnamdi show to talk about the opportunities and hazards that come with using social networking sites.