Health Care Hackers
Presenting our research to a roomful, not just a row full, of rare-disease patients and caregivers was an extraordinary experience.
What People Living With Rare Disease Can Teach Us
Susannah Fox presented research on how people, particularly those living with rare disease, use online health resources and what the rest of us can learn from them.
Family Caregivers Online
Thirty percent of U.S. adults provide support to a loved one. The internet is a key information and communications resource for this front-line labor force.
CureTogether acquired by 23andme
Grassroots contribution to health research just got a boost. Is it time for us to measure personal genetic testing?
Bowling Alone, Healing Together
The American Journal of Managed Care recently published a commentary entitled, “Bowling Alone, Healing Together: The Role of Social Capital in Delivery Reform.”
Video: peer-to-peer health care
A 5-minute video overview of peer-to-peer health care.
Pew Internet asked two questions about “self-tracking” in 2010 – how should we expand this area of our research?
Susannah Fox will serve as a “white hat” advisor to participants in the Health Data Initiative Forum.
Mama birds: Catherine Fairchild Calhoun and Laurie Strongin
A conversation about rare disease, the impact of the internet, and love.
The internet’s impact on one man’s life
How one man became the chief of a tribe he didn’t know existed, thanks to the internet.