UncategorizedJuly 14, 2012

What People Living With Rare Disease Can Teach Us

Susannah Fox presented research on how people, particularly those living with rare disease, use online health resources and what the rest of us can learn from them.

UncategorizedJuly 12, 2012

Family Caregivers Online

Thirty percent of U.S. adults provide support to a loved one. The internet is a key information and communications resource for this front-line labor force.

UncategorizedJuly 10, 2012

CureTogether acquired by 23andme

Grassroots contribution to health research just got a boost. Is it time for us to measure personal genetic testing?

UncategorizedJune 27, 2012

Bowling Alone, Healing Together

The American Journal of Managed Care recently published a commentary entitled, “Bowling Alone, Healing Together: The Role of Social Capital in Delivery Reform.”

UncategorizedJune 12, 2012

Video: peer-to-peer health care

A 5-minute video overview of peer-to-peer health care.

UncategorizedJune 8, 2012

Unpacking self-tracking

Pew Internet asked two questions about “self-tracking” in 2010 – how should we expand this area of our research?

UncategorizedJune 5, 2012

Health Datapalooza

Susannah Fox will serve as a “white hat” advisor to participants in the Health Data Initiative Forum.

UncategorizedMarch 16, 2012

Mama birds: Catherine Fairchild Calhoun and Laurie Strongin

A conversation about rare disease, the impact of the internet, and love.

UncategorizedMarch 13, 2012

The internet’s impact on one man’s life

How one man became the chief of a tribe he didn’t know existed, thanks to the internet.

UncategorizedMarch 9, 2012

What’s the future for self-tracking?

Stephen Wolfram predicts that we will all self-track some day, but a Pew Internet survey suggests we have a long way to go. Just 1 in 4 internet users track health data online.