The Stupid Cancer Show
Susannah Fox discusses Pew Internet’s health research, including a special survey of people living with cancer.
Participatory Culture + Health Care
Quick answers to frequently-asked questions: Is a cultural shift affecting health care? How do people judge the quality of health information online? Are patients ready for this?
Participatory medicine and health data rights on NPR
NPR’s Morning Edition story, “Patients Turn to Online Buddies for Help Healing,” combined research and real-life examples, participatory medicine and health data rights.
Preventing Stroke and Heart Disease: New and Emerging Opportunities and Innovations
Susannah Fox will discuss how adults living with chronic conditions such as high blood pressure and heart disease are – or are not – using the internet.
Tell the FDA the whole story, please
The FDA should hear about the reality of the information marketplace, which is increasingly mobile and social, not about the past failings of consumers to check the source and date of health information online.
Informatics for Consumer Health: Privacy, Security and Confidentiality
As part of a panel on privacy, security, and confidentiality, Susannah Fox discussed the “shadow economy” of health data that has sprung up, with all the dangers and opportunities of an unregulated market.
Trends in medical searches online: How e-patients use the internet
New trend charts showing how e-patients use the internet and search for health information online.
Trends: The Social Life of Health Information
Connected patients spread new ideas, new treatments, and new ways of approaching a condition. Put them on your team.
The rise of the e-patient
In this talk to medical librarians, Lee Rainie covered how e-patients and their caregivers have become a force in the medical world. In addition, he looked at the many ways that e-patients are using the internet to research and respond to their he…
The Patient is In
Health 2.0: User-Generated Healthcare showcased patient advocates and their use of technology in pursuit of better health. Susannah Fox provided context for the discussion based on a national survey of people living with chronic conditions.