E-patients, Cyberchondriacs, and Why We Should Stop Calling Names
The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms.
Problems associated with surveying small demographic groups
Why doesn’t Pew Internet report findings for Asians, Pacific Islanders or other groups as part of its standard demographic variables?
Crowdsourcing a Survey: Health Topics
One of our core health findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series of questions that is tweaked in each survey. We re-word or separate concepts, cut some topics, a…
Pandas, Lobsters, and Health Care
Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale?
Mobile, Social Health at the National Library of Medicine
Speaking to the senior staff of the National Library of Medicine last week was like going before the best kind of murder board. Our jumping-off point was the Pew Internet Project’s latest research on internet penetration, mobile use, and the socia…
Patient Communities… at Walgreens?
I concluded a recent speech with a challenge: If chronically ill patients can find ways to connect and learn from each other, why can’t your organizations find ways to connect and learn from them? One executive’s positive reaction surprised even m…
Health 2.0 DC: Passion and Execution at Scale
I think conferences are deeply affected by the spirit of their host city. San Francisco has its hackers and dreamers, Boston has its entrepreneurs and ivy, Paris has its pomp and worldliness. At Health 2.0 DC yesterday, my city showed that it ha…
Making Health Data Sing (Even If It’s A Familiar Song)
The innovators being showcased today at the Community Health Data Initiative event are examples of people who want to talk about health disparities AND do something about it.
Lessons and Highlights from the Gov 2.0 Expo
The Gov 2.0 Expo was a smorgasbord of policy, technology, and citizen engagement. Aaron Smith and Susannah Fox share their notes.
A New Conversation About Health Privacy
Mobile, social technologies are tapping in to a human need to connect with each other, to share, to lend a helping hand, and to laugh. I’d like to start a conversation about health privacy that includes an open dialogue about the risks and benefit…