The Social Life of Health Information

Social Media and Health

Many seek a “just-in-time someone-like-me” but few post their own stories.

E-patients are using the internet to compare their options, just as they do with other major decisions,7 and to find the "just-in-time someone-like-me" who can aid their decision-making.

Fifty-nine percent of e-patients have done at least one of the following activities:

  • 41% of e-patients have read someone else's commentary or experience about health or medical issues on an online news group, website, or blog. About half of e-patients between the ages of 18-49 have read someone else’s commentary online, compared with about one-third of e-patients ages 50 and older.
  • 24% of e-patients have consulted rankings or reviews online of doctors or other providers.
  • 24% of e-patients have consulted rankings or reviews online of hospitals or other medical facilities.
  • 19% of e-patients have signed up to receive updates about health or medical issues. Customized health bulletins are especially popular among e-patients age 50-64: 23% have signed up to receive such updates, compared with 14% of e-patients ages 18-29, for example.
  • 13% of e-patients have listened to a podcast about health or medical issues.

E-patients with a college degree are more likely than those with a high school diploma to have done the top three activities (47% have read someone else’s commentary, for example, vs. 33% of e-patients with a high school diploma). E-patients with home broadband are more likely than those with dial-up access to have done all of these activities (26% of e-patients with home broadband have consulted online reviews of health professionals, for example, vs. 18% of those with dial-up).

Other recent studies found similar trends. For example, a 2009 Deloitte Center for Health Solutions survey found that a growing number of adults are “comparing doctors, hospitals, medications, devices, health plans and self remedies.”8 Edelman’s Health Engagement Barometer points out that “no single source of information stands out or stands alone” in the networked world of many health consumers.9 And yet the Center for Studying Health System Change finds that just 41% of patients have the knowledge and confidence required to manage their health in this new world.10

Indeed, the activation gap may extend online as there is not universal access to communication technologies. Someone’s “just-in-time someone-like-me” may not be online or they may not be speaking up in public forums.

Twenty percent of e-patients have done at least one of the following activities:

  • 6% of e-patients have tagged or categorized online content about health or medical issues. E-patients ages 30-64 are more likely than older and younger e-patients to have tagged health content.
  • 6% of e-patients have posted comments, queries, or information about health or medical matters in an online discussion, listserv, or other online group forum.
  • 5% of e-patients have posted comments about health on a blog.
  • 5% of e-patients have posted a review online of a doctor.
  • 4% of e-patients have posted a review online of a hospital. E-patients ages 18-29 are more likely than older e-patients to have posted a hospital review.
  • 4% have shared photos, videos or audio files online about health or medical issues.

Notes

7 Lee Rainie, Leigh Estabrook, and Evans Witt, “Information Searches That Solve Problems.” (Pew Internet Project: December 30, 2007) See: http://www.pewinternet.org/Reports/2007/Information-Searches-That-Solve-Problems.aspx

8 "2009 Survey of Health Care Consumers," Deloitte Center for Health Solutions. See: http://www.deloitte.com/dtt/article/0,1002,sid%253D127087%2526cid%253D248733,00.html

9 “Health Engagement Barometer,” Edelman (2008). See: http://engageinhealth.com/docs/Edel_HealthBarometer_R13c.pdf

10 “How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter,” Center for Studying Health System Change (October 2008). See: http://www.hschange.com/CONTENT/1019/

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Copyright 2012 Pew Internet & American Life Project

The Pew Research Center's Internet & American Life Project is one of seven projects that make up the Pew Research Center. The Center is supported by The Pew Charitable Trust.