E-patients With a Disability or Chronic Disease
On behalf of the Pew Internet & American Life Project, I would like to acknowledge the following contributions to this study:
Tom Ferguson, MD, coined the term “e-patients” to describe individuals who are equipped, enabled, empowered and engaged in their health and health care decisions. Dr. Ferguson’s book, “E-Patients: How They Can Help Us Heal Health Care” can be downloaded from http://www.e-patients.net/
Princeton Survey Research Associates International: PSRAI conducted the telephone survey that is covered in this report. It is an independent research company specializing in social and policy work: http://www.psrai.com/
Association of Cancer Online Resources: Special thanks to the ACOR list owners and members who contributed essays about their experiences as e-patients and caregivers. ACOR offers access to 159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders: http://www.acor.org/
About the Pew Internet & American Life Project: The Pew Internet Project is a nonprofit initiative of the Pew Research Center and is funded by The Pew Charitable Trusts to examine the social impact of the internet. The project is non-partisan and does not advocate policy outcomes: http://www.pewinternet.org/
Cite this publication: Susannah Fox. “E-patients With a Disability or Chronic Disease.” Pew Research Center, Washington, D.C. (October 8, 2007) http://www.pewinternet.org/2007/10/08/e-patients-with-a-disability-or-chronic-disease/, accessed on July 22, 2014.